Clinical Research Assistant — Sweetser Lab

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Massachusetts General Hospital’s Genetics Program is recruiting a Clinical Research Assistant to help to coordinate patient evaluations for the Undiagnosed Diseases Network (UDN) at the Harvard clinical site and assist with other clinical research studies in the MGH Genetics Program.

The UDN is a multi-site NIH-funded clinical research study that aims to improve diagnosis and care for patients with undiagnosed diseases.   The Harvard clinical site (HUND) includes Brigham and Women’s Hospital, Massachusetts General Hospital (MGH) and Boston Children’s Hospital (BCH).

The Research Assistant will play a key role in the day-to-day administration and coordination of clinical and research activities.  This position would specifically include responsibilities involving the MGH clinical site of the Harvard UDN and the MGH Genetics Program.

The Research Assistant will report directly to the UDN Clinical Coordinator and the Unit Chief of Medical Genetics.

For more information regarding the UDN, please visit: and

Interested candidates should apply via attach a cover letter to your resume. 



  • Clinical Program Management
  • Undiagnosed Disease Network (UDN)
  • Coordinate UDN patient evaluations at the MGH site
  • Act as primary point of contact for all patient and family inquiries
  • Coordinate consent process between patients and family members and the site genetic counselor/ coordinator
  • Coordinate the distribution and collection of consent forms, release forms, blood collection kits
  • Assist genetic counselor in requesting and compiling medical records
  • Assist genetic counselor in organizing and scheduling patient/family clinical and research evaluations
  • Assist during the patient/family visits – getting to & from appointments, sample handling, etc.

Other administrative responsibilities:

  • Biweekly clinical evaluation team meetings – send agendas, record meeting minutes, follow up on action items, and other miscellaneous activities
  • Attend HUND case assessment & steering committee meetings at BWH and HUND administrative calls
  • Assist with IRB documentation
  • Assist with tracking and data entry for the HUND, including data entry in RedCap database
  • Assist with clinical and research billing
  • Manage processing of storing, tracking, and shipping samples, both clinical and research MGH Medical Genetics Program
  • Assistance with maintaining the Genetics Biorepository
  • Assist with consenting enrollment and documentation
  • Maintaining records and updating the RedCap database
  • Assisting in IRB amendments and reviews
  • Creation of clinical survey instruments



This position requires a Bachelor’s degree with strong academic performance and a demonstrated background in research or quantitative skills. We are seeking a highly motivated, good-spirited team player who gets along well with others from diverse intellectual and social backgrounds. A strong quantitative background and both good writing and oral communication skills are important. No knowledge of genetics or rare diseases is necessary; we will provide necessary teaching. We value flexibility, initiative, and independence as well as interests in medicine, epidemiology, health policy, biostatistics, economics, and computer programming.

Interested candidates should apply via attach a cover letter to your resume. 



  • Proficiency with standard office software (Microsoft Word, Excel, and PowerPoint as well as Internet applications) as well as ability to learn new computer applications
  • Strong understanding of research methodology, HIPAA requirements and human research regulations
  • Careful attention to detail and organizational skills
  • Ability to prioritize among many tasks, to work quickly under pressure
  • Excellent communication and interpersonal skills, collaborates well with others
  • Ability to demonstrate high degree of professionalism and discretion
  • Ability to prioritize tasks and set deadlines
  • Ability to take initiative and capable of multi-tasking



  • Busy office environment with time sensitive work
  • Opportunities for direct patient contact and observing clinical care
  • Exposure to genetics & genomics, rare diseases, genetic counseling, and medical specialists
  • Member of close-knit team including physicians, genetic counselors, managers, administrators, and fellows

 EEO Statement Massachusetts General Hospital is an Equal Opportunity Employer.  By embracing diverse skills, perspectives and ideas, we choose to lead. Applications from protected veterans and individuals with disabilities are strongly encouraged.


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